Registry IT Team Lead

Registry · Leiden (Hybrid)

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Are you looking for a job where you can make a difference and work in a non-profit? Would you like to be a part of an ambitious and international organisation on the cutting edge of science? Then this position might be right up your alley.

The EBMT is a non-profit medical and scientific organisation which hosts a unique patient registry providing a pool of data to perform studies and assess new trends. 


Our mission

Save and improve the lives of patients with blood-related disorders.

Your mission

Responsible for leading the application management team, database quality assurance and project coordination.

Responsibilities and Tasks

Project Coordination and communication:

  • Design, development, maintenance and evaluation of system processes. Coordinate technical projects by leading staff and making decisions on the allocation of relevant resources.

 Database compliance and security

  • Ensuring the database is up-to-date regarding European legislation in collaboration with EBMT’s quality management unit
  • Actively monitor and implement IT security measures

  Service Development

  • Explore users’ needs and offer solutions within available resources in collaboration with the EBMT helpdesk and data operations team.

  Staff Management

  • Manage the team including 1 to 1s appraisals/staff performance reviews, training, support, recruitment, holidays and absence.

Education & Professional Development

  • Develop and design training in application management and technical skills.


  • Fluent in English, excellent written and oral skills
  • At least 5 years’ experience as Data Analyst or similar.
  • Experience with managing large databases and projects, with indicators and goals.
  • Knowledge of data collection in a clinical / research setting, and clinical data itself (ideally hematology).
  • Knowledge of database and programming languages such as SQL, R, Python.
  • Strong communication, negotiation and effective interpersonal skills.
  • Solid strategic and analytical skills. Strong problem-solving, hands-on attitude.
  • Ability to oversee multiple tasks simultaneously and manage deadlines.


  • PhD or Master’s degree in Computer Science or similar
  • Previous experience as manager or supervising & leading teams
  • Familiar with trends in IT, data collection systems and database security
  • Familiarized with OMOP CDM or other CDM and data standardization 
  • SCRUM, ITIL, PRINCE2 or similar

What we offer

  • Be part of a non-profit society where you can make a difference
  • Work alongside a multicultural and diverse international team
  • Based in Leiden or surroundings - attendance to EBMT offices 2 days per week and working remotely 3 days.
  • Full-time position (36 hours/week)
  • Flexible working hours (starting from 8am to 10am and finish accordingly).
  • 1 month probation period
  • 25 days of vacation per year
  • Salary: 60.000 - 70.000 euros gross/annual (including 8% holiday allowance and 8.3% end of year bonus)

Benefits (once probation period is over)

  • Travel allowance for commuting on office days
  • Some foreign travel
  • Support in training and professional development
  • A pension arrangement with the National Civil Pension Fund


Location (Hybrid)

Location (Hybrid)